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Item Information       Summary     More Content     More by this author     Alexander, Rebecca (Psychotherapist)     Subjects     Alexander, Rebecca (Psychotherapist) -- Health.     Retinitis pigmentosa -- Patients -- United States -- Biography.     Usher's syndrome -- Patients -- United States -- Biography.     People with disabilities -- United States -- Biography.     Browse Catalog     by author:      Alexander, Rebecca (Psychotherapist)       by title:      Not fade away [elect...         MARC Display

Not fade away [electronic resource] : a memoir of senses lost and found / Rebecca Alexander and Sascha Alper. by Alexander, Rebecca (Psychotherapist) New York : Gotham Books, 2014. Subjects Alexander, Rebecca (Psychotherapist) -- Health.   Retinitis pigmentosa -- Patients -- United States -- Biography.   Usher's syndrome -- Patients -- United States -- Biography.   People with disabilities -- United States -- Biography. Electronic Resource http://hawaii.lib.overdrive.com/ContentDetails.htm?ID=3AADBB5E-0C3E-4522-81F0-961FE90CC344 This title is available online; click here to access Electronic Resource http://images.contentreserve.com/ImageType-100/1523-1/{3AADBB5E-0C3E-4522-81F0-961FE90CC344}Img100.jpg ISBN:  9780698162167 (electronic bk.) 0698162161 (electronic bk.) Description:  1 online resource. Requests:  0 Summary:  The inspiring memoir of a young woman who is slowly losing her sight and hearing yet continues to live each day with grace and purpose Thirty-four-year-old Rebecca Alexander is a psychotherapist, a spin instructor, a volunteer, and an athlete. She is also almost completely blind, with significantly deteriorated hearing. Not Fade Away is a deeply moving exploration of the obstacles we all face'physical, psychological, and philosophical. Like The Diving Bell and the Butterfly, Rebecca's story is an exquisite reminder to live each day to its fullest. When Rebecca was twelve, her parents were told that she would be completely blind before she turned thirty. At eighteen, she fell through a window, shattering her body. In college, she found out that due to a rare genetic disorder'Usher Syndrome Type III'she was losing her hearing as well. Since then, she has earned two Master's degrees from Columbia University, ridden a six-hundred-mile bike race, hiked the Inca Trail, and established a thriving career'all while maintaining a vibrant social life. In Not Fade Away, Rebecca charts her journey from a teenager who tried to hide her disabilities, to a woman who is able to face the world exactly as she is. She meditates on what she's lost'the sound of laughter and skies full of stars, which she can now only imagine (though, she quips, "It's not like anyone can see stars in New York anyway")'and what she's found in return: an exquisite sense of intimacy with family and friends who've stuck by her, and a profound appreciation for everything she still has. Even though Rebecca inhabits a gradually darkening world, she refuses to let that stop her from living life with joy and enthusiasm.   Copy/Holding information No Item Information

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