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Item Information   Holdings     Summary     More Content       More by this author     Lanier, Heather Kirn, author.     Subjects     Lanier, Heather Kirn -- Family.     Lanier, Fiona, 2011-     Mothers of children with disabilities -- United States -- Biography.     Wolf-Hirschhorn syndrome -- Patients -- United States -- Biography.     Genetic disorders in children -- United States.     Human chromosome abnormalities.     Mothers and daughters -- United States.     Browse Catalog     by author:      Lanier, Heather Kirn, author.       by title:      Raising a rare girl ...         MARC Display

Raising a rare girl : a memoir / Heather Lanier. by Lanier, Heather Kirn, author. New York : Penguin Press, 2020. Subjects Lanier, Heather Kirn -- Family.   Lanier, Fiona, 2011-   Mothers of children with disabilities -- United States -- Biography.   Wolf-Hirschhorn syndrome -- Patients -- United States -- Biography.   Genetic disorders in children -- United States.   Human chromosome abnormalities.   Mothers and daughters -- United States. ISBN:  9780525559634 (hardcover) : 0525559639 (hardcover) : Description:  311 pages : illustrations ; 24 cm Requests:  0 Summary:  "The author's daughter was born with a very rare genetic syndrome and faced a daunting prognosis: she would be a fraction of normal size, have innumerable physical and mental difficulties and likely a shortened lifespan. Now, at age eight she is attending standard public school classes. This is the story of her family's journey"--   Copy/Holding information Location Collection Call No. Status   Hawaii State Library Business, Science & Technology 618.97604 Lanier La Checked In Add Copy to MyList Hilo Public Library Adult Nonfiction 618.97604 Lanier La Checked In Add Copy to MyList

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