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Item Information   Holdings     Summary     More Content       More by this author     Olsen, Darcy, author.     Subjects     United States. Food and Drug Administration     Patients -- Civil rights -- United States.     Clinical trials -- United States.     Browse Catalog     by author:      Olsen, Darcy, author.       by title:      The right to try : h...         MARC Display

The right to try : how the federal government prevents Americans from getting the life-saving treatments they need / Darcy Olsen. by Olsen, Darcy, author. New York, NY : Harper, an imprint of HarperCollins Publishers, c2015. Subjects United States. Food and Drug Administration   Patients -- Civil rights -- United States.   Clinical trials -- United States. ISBN:  9780062407528 (hardcover) : 006240752X (hardcover) Description:  viii, 311 pages, 8 unnumbered pages of plates : illustrations ; 24 cm Edition:  First edition. Requests:  0 Summary:  "The inspiring state-by-state campaign to allow sick Americans access to experimental treatments currently blocked by the government, chronicled by the woman leading the charge. Should you need the government's permission to try to save your own life? Today, the FDA regulates medications available to Americans. But it takes an average of ten years to bring a new drug to market. Every day thousands of Americans die unnecessarily from fatal diseases for which lifesaving treatments that now exist or are being developed are ruled too "dangerous" for commercial distribution. But how does that FDA standard apply to someone in the terminal stages of cancer or ALS? 'Right to Try' is filled with stories of heroism and heartbreak -- of courageous Americans who beat illnesses no one thought could be defeated; parents who won the fight to get their children access to cutting-edge cures; patients who were denied life-saving treatments by the government ostensibly for their own protection; and incredible doctors and researchers pioneering revolutionary cures. Drawing on her experience fighting for patients, Darcy Olsen goes inside the federal bureaucracy that is stopping millions from accessing these lifesaving treatments, lays out the case for expanding access to experimental medicines, and describes the ongoing national campaign to change these laws state-by-state. Cogent and persuasive, this powerful and informative book is clarion call for reform that definitively answers the question: When your mortality hangs in the balance, shouldn't you have the right to try to save your own life?"--Provided by publisher.   Copy/Holding information Location Collection Call No. Status   Hilo Public Library Adult Nonfiction 363.1946 Olsen Checked In Add Copy to MyList Mililani Public Library Adult Nonfiction 363.1946 Ol Checked In Add Copy to MyList

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