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Navigating life with Parkinson disease / Sotirios A. Parashos, Rose L. Wichmann, Todd Melby.

by Parashos, Sotirios A.

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Oxford ; New York : Oxford University Press, 2013.

Parkinson's disease -- Patients.

Parkinson's disease -- Patients -- Rehabilitation.

Self-care, Health.

9780199897780 (pbk. : alk. paper)

0199897786 (pbk. : alk. paper)

Neurology now books.

xx, 295 p. : ill. ; 21 cm.

Introduction. You are not alone ; About this book and how to use it -- What is it? Why me? What is it? ; What causes Parkinson disease? ; What are the stages of the disease? ; Who gets the disease? Why me? ; Is there help? ; The outlook for Parkinson's patients -- The motor symptoms. Tremor ; Bradykinesia ; Rigidity ; Loss of balance, freezing, and falling ; Other motor symptoms ; Motor symptoms that may occur as a complication of treatment -- The non-motor symptoms. Sensory symptoms ; Cognitive symptoms ; Emotional and psychiatric problems ; Sleep ; Autonomic nervous system dysfunction ; Skin problems -- Diagnosis. Making and verifying the diagnosis ; The role of the neurologist and the medical team ; Frequently asked questions regarding diagnosis and assembling a team of experts -- How will my life change? Reacting to the diagnosis ; Seeking more information ; Frequently asked questions about how to deal with the diagnosis of Parkinson disease ; The next step -- Disease management : general principles, medications, and surgery. What are our weapons in treating Parkinson disease? ; What if I don't want to start medications right away? ; Medications ; Brain surgery for Parkinson disease -- Disease management : rehabilitation therapy, assistive devices, and adaptive equipment. Physical therapy ; Occupational therapy ; Speech therapy ; Assistive devices and adaptive equipment -- Disease management : specific symptoms. Managing tremor, bradykinesia, and rigidity ; Managing balance challenges and freezing of gait ; Managing weakness and fatigue ; Managing dyskinesia, dystonia, and wearing off ; Managing excessive salivation, drooling, and thick secretions ; Managing swallowing problems ; Managing vision problems ; Managing difficulties with bladder control ; Dealing with loss of mobility in the advanced stages ; Dealing with mild cognitive symptoms ; Managing confusion, hallucinations, and dementia ; Dealing with apathy, depression, impulsivity, and anxiety ; Managing sleep changes in Parkinson disease ; Managing orthostatic hypotension ; Weight loss ; Keeping skin in shape ; Hospitalization ; Elective surgery ; Medications to avoid -- Lifestyle changes and disease management. The importance of exercise ; Leisure activities ; Stress management ; Driving ; Using complementary therapies ; Spirituality ; Travel ; The power of music and dance ; Getting involved in the Parkinson's community -- Research. Why should I consider participating in research? ; What kinds of research studies may be open to a person with Parkinson disease? ; Informed consent ; Where can I learn more? -- The care partner. Coping with caregiver stress and fatigue ; Planning for the future ; A caregiver's story : Marilyn ; A caregiver's story : Rich -- Community involvement, advocacy, and resources. A passion for advocacy ; A passion for the arts and helping others ; Find out more -- Planning for your future : managing your personal affairs. Your emergency notebook ; Informal and formal arrangements ; Durable power of attorney ; Trusts ; Health care directives ; Guardianship and conservatorship ; Your will.

A guide for anyone affected by Parkinson's disease -- patients, caregivers, family members, and friends. Discusses the available treatments and provides practical advice on how to manage the disease in the long term, including life-style adjustments that will provide a better quality of life and moderate the burden for patients and their loved ones. Written by two experts on Parkinson's disease and a freelance journalist. Question and answer sections are provided, with "hot topics" are highlighted for easy visibility. Includes true patient stories that will both inspire and instruct, and they have addressed several topics often not mentioned in physician-directed disease management, such as how to talk to family and friends about one's life with Parkinson's.

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